I really want to blog more than once a fortnight, but OMG I am so effing TIRED. I hardly know which way is up or down any more. Sleep deprivation has taken its toll and I have been reduced to a mere shell of a mama. Clear thinking I am not. I am dull with fatigue. All the colour has bleached out of me, leaving a faint wash of weary, dreary grey.
I’m finding it hard to stay up past bunny’s bedtime. And that’s the only time I have to blog. The rest of the day is hopeless since bunny keeps my hands fully tied from dawn to dusk. He’s the Duracell Bunny. Not to be confused with the Energiser Bunny, which is the American rip off version.
But I digress. I didn’t come online to blog about battery bunnies, fascinating topic that it is. Instead, I wanted to blog about bunny’s ailments. Bunny and I are falling way down the rabbit hole of food intolerances. There’s nothing left to eat. Really. We are withering away.
I spent a bucketload of dosh on blood tests which apparently aren’t all that accurate. Anyway, we don’t get the results for 2 more days. In the meantime, I am racking my addled, sleep-deprived brain for recipe ideas and toddler snacks that don’t have any gluten, grains, corn, soy, dairy, eggs, sugar, fruit, tomatoes, potatoes, chicken, pork or turkey in them. If you have any ideas, PLEASE send them my way.
Up until today we were living on rice. We were eating more rice foods than you can shake a stick at. Rice cakes. Rice crackers. Rice cereal. Rice bread. Rice protein drinks. Rice milk. And rice itself of course. We had rice coming out of our ears. It was the last staple in our desert of a diet. I was clutching at rice straws with my last bit of strength. Thank goodness there was something to spread a little avocado on. Something white to splash over our sugar-free rice crispies. Something to crunch as an afternoon snack.
And then guess what? Today we have to eliminate rice aswell because despite all our food eliminations, bunny is STILL suffering from horrible symptoms. It’s unbelievable. Inconceivable. But there it is. The naked truth. We have nipped our options down to a nub. Nothing left for us to eat but vegetables, beans and meat.
I’ve been a vegetarian for the last 25 years, and I am almost at breaking point. I actually cooked a couple of grass-fed beefburger bites for bunny this evening. He wolfed them down with great gusto, in true carnivore style. All that vegetarianism in the womb has given him an appetite for blood.
This effort of extreme elimination has a purpose. We are desperately trying to reach baseline. Mostly for bunny. I don’t really give a monkeys about my own symptoms (although I would like just a tad more sleep and less of an itchy bum please). More than anything I want my baby boy to feel better, to eat better, to sleep better. If he sleeps better, then I will sleep better. If he’s happy, then I’m happy.
Baseline means that bunny doesn’t have any symptoms for at least 4 weeks. In other words: no rash, no pimples and no spots on his body, no eczema, no scaliness behind his ears, no compulsive ear tugging, no fussing and kicking at bed-time, and sleep cycles for more than 30 minutes at a time with no crying in between. So far the elusive baseline, has well… eluded us. We haven’t got there yet, but we will. I’m determined. I’m not going to let these foods get the better of me and my bunny.
We might have to eliminate beans. That’s next on the list. If nothing else it will certainly smell a bit sweeter around here.
Fri 24 Jul 2009 at 5:30 am
Wow, that is really tough. Hang in there it won’t last forever.
Sun 26 Jul 2009 at 2:59 pm
Hi, the rice may actually be part of the problem. I have a few book recommendations for you -
Breaking the Vicious Cycle by Elaine Gottschall
Gut and Psychology Syndrome by Natasha Campbell-McBride
We Band of Mothers by Judith Chinitz
These books address how unhealthy gut bacteria actually lead to leaky gut and food intolerances, and hoe those unhealthy gut bacteria actually make the child CRAVE the rice etc. that feeds them. Everything you’ve written, I’ve seen in these books. The poop issues. The “rice is all he can eat”.
Dh and I have been working with an amazing nutritional counselor who’s opened our eyes to these issues. She’s made a huge difference in our lives, including with our son. She has some free teleclasses coming up – I’m going to c/p the info below. These two classes may not specifically address this issue but she has plenty of info that does.
You’re probably feeling overwhelmed right now but the good news is, if you can solve this issue now, you;re saving yourself some more serious problems down the road. I was linked to your blog by a Facebook friend so please understand I have no hidden agenda here but I feel I must give you this information! My son;s much older than your child (10) and I so wish I’d known all this when he was younger. We are putting him on the SCD (specific carbohydrate diet) starting next week. The good news is it’s not forever – hopefully the gut can be “healed and sealed” in a couple of years and many of the intolerances may go away for good. But gluten free isn’t enough – there are other carbs than gluten which may be messing with your child’s system.
You may find the books a little scary – many of the people who are in them (and write them) have kids who are of were autistic because of gut issues and proteins ending up in the brain. Please don’t let that scare you away from reading them though – you are actually in a great position to help your child easily and permanently at such a young age.
Best -
Penny
pennywayneshapiro@gmail.com
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Sun 26 Jul 2009 at 3:06 pm
Oh, I just re-read about the grass-fed beef, veggies and beans. I would stick the the beef and veggies – the beans may be part of the carb problem. Also, it may take more than 4 weeks, and there may be some regressions because of bacterial die-off, but these are apparently predictable (kind of like nursing and growth spurts) and once you get past them you’ll be in a much better place. Please, please, read these books!!! Everything you;re writing, I’ve already seen in them!
Sun 16 Aug 2009 at 5:14 am
Hi,
Have you a copy of Sue Dengate’s books ‘The Failsafe Cookbook’ and ‘Fed Up’ (Go to fedup.com.au). The former one is my other bible. I believe Sue works with the Royal Prince Alfred Hospital in Sydney, Australia.
I am intolerant of all fruits, most vegies, poultry and fish skin, hot or long cooked foods, aged, long frozen, aged and reheated meats etc etc etc. Fortunatley I have no alergies and am tolerate of most grains. After going on an elimination diet I found that I am intolerant to amines and salicylates which are common in most foods and food additives. With this background I understand how difficult it is for you. Don’t persist with doctors who aren’t actively seeking a solution or who don’t believe in food intolerance. Intolerances are about six times more common than alergies yet many doctors either don’t believe in them or don’t understand them.
I highly recommend the Dengate books and wish you well.
Geoff
Tue 18 Aug 2009 at 1:19 pm
Thank you so much. We are still struggling along here, and appreciate all the resources and feedback tips. Yes, rice was a problem. We cut that out now and have seen better results. And yes, I will get those books, thank you. It’s a BIG challenge, but we are taking it forward one step at a time.